Systemic Lupus Infusion Therapy
Systemic lupus is a long-lasting illness where the body's defense system attacks its own healthy parts by mistake. It can cause problems in many areas like the skin, joints, and organs. People with lupus often feel very tired, have joint pain, and may get rashes. The illness comes and goes, with times of feeling worse and times of feeling better. While there's no cure, medicines and lifestyle changes can help manage it. It's more common in young women but can affect anyone.
Symptoms
Symptoms
The main symptoms of systemic lupus include:
- Fatigue: Extreme tiredness that doesn't improve with rest
- Joint pain and swelling
- Skin rashes, especially the "butterfly rash" across the cheeks and nose
- Fever
- Hair loss
- Sensitivity to sunlight
- Chest pain
- Dry eyes and mouth
- Headaches
- Memory problems or confusion
- Anemia (low red blood cell count)
- Blood clotting problems
- Fingers and toes that turn white or blue when cold (Raynaud's phenomenon)
Remember, symptoms can vary widely between individuals and may come and go. If you suspect you have lupus symptoms, it's important to consult a doctor for proper diagnosis and treatment.
Treatment Options
Treatment options for systemic lupus aim to manage symptoms, reduce inflammation, and prevent organ damage. The main approaches include:
Medications:
- Non-steroidal anti-inflammatory drugs (NSAIDs) for pain and inflammation
- Antimalarial drugs like hydroxychloroquine to manage skin rashes and joint pain
- Corticosteroids to reduce inflammation quickly
- immunosuppressants to control the overactive immune system
- Biologics like belimumab for specific cases
Lifestyle changes:
- Sun protection to prevent flares
- Regular exercise to maintain joint flexibility and overall health
- Balanced diet rich in fruits, vegetables, and whole grains
Stress management techniques:
- Regular monitoring:
- Frequent check-ups to track disease activity
- Blood tests to monitor organ function and medication effects
Complementary therapies:
- Acupuncture for pain relief
- Massage to ease muscle tension
- Mindfulness practices for stress reduction
Organ-specific treatments:
- Additional medications or procedures may be needed if specific organs are affected
Treatment plans are typically personalized based on the individual's symptoms, disease severity, and affected organs. It's crucial to work closely with a rheumatologist to find the most effective treatment combination.
Living With
Living with systemic lupus involves ongoing management and lifestyle changes.
Consistent medical care is crucial, including following treatment plans and regular check-ups.
Managing fatigue is key, often requiring careful activity planning and prioritizing rest.
Sun protection is essential, as UV exposure can trigger flares.
A healthy lifestyle, including balanced diet and appropriate exercise, supports overall well-being.
Stress reduction techniques like meditation can help manage symptoms.
Workplace accommodations may be necessary to continue working effectively.
Building a strong support network, including family, friends, and support groups, is beneficial.
For those considering pregnancy, careful planning with medical supervision is important.
Learning to recognize and manage flares is a vital skill for people with lupus.
Attention to mental health is crucial, as chronic illness can impact emotional well-being.
Meet our Infusion Specialists
Jalal Thwainey M.D.
Medical Director
Emilie Wojcik, N.P.
Director of Clinical Services
For Provider
Simplify patient referrals and offer advanced treatment options with our infusion partnership program.
For Patient
There may be a better way to manage your condition – explore infusion therapy.